e-journal
Falling into the depths of his mind: Action research as a way of maintaining a relationship with a loved one with dementia
Maintaining a meaningful relationship with a loved one who is diagnosed with dementia
and hospitalized is significant, both for the person with dementia and for his/her relatives
and friends. Nevertheless, the process of dementia poses great challenges and
obstacles for communication. This article’s aim is to discuss the potential contributions
of action research (AR) as an effective way for managing these challenges. Based on the
researcher’s personal experience of using AR cycles of action–reflection–action in interactions
with a loved one with dementia, the study identifies and discusses four such
cycles: 1) negotiating the diagnosis; 2) sliding between reality and delusion; 3) reflecting
on the mental experiences of dementia; 4) positioning myself in relation to the loved
one and the institutional setting. The article contributes to the development of AR
theory in two major ways: first, it explores the possibility and challenges of conducting
AR when the participants’ ability to conduct a dialogue cannot be taken-for-granted and
is itself the topic of inquiry. Second, it explores the potential contributions of AR for
coping with situations that are usually described and approached in medical terms.
Keywords: Action research, communication, dementia, person-centred care
Tidak ada salinan data
Tidak tersedia versi lain