e-journal

Acceptance and Decision Making in Amyotrophic Lateral Sclerosis From a Life-Course Perspective

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Researchers have explored perceptions of health care services among people with amyotrophic lateral sclerosis
(ALS), but little is known about how and why people with ALS engage with services. We undertook a grounded
theory study to identify key psychosocial processes that underpin how and why people with ALS engage with health care services. We conducted in-depth interviews with 34 participants sampled from the Irish ALS population-based register. We found that age and life stage shaped participants’ decision making about care. Participants in later life were more accepting of ALS and of death than young and middle-aged participants. Family was the primary context to how participants engaged with services, and their decisions about care were shaped by parenthood at different life stages. Health care professionals need to be attuned to the impact of life-course trajectories and family relations on the decisions people with ALS make about their care.

Keywords: aging; families; grounded theory; health care, users’ experiences; illness and disease, life threatening / terminal; palliative care; parenting

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Informasi Detail

Judul Seri

Qualitative Health Research

No. Panggil

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Penerbit

London : SAGE., 2014

Deskripsi Fisik

Qualitative Health Research 2014, Vol. 24(1) 67– 77

Bahasa

English

ISBN/ISSN

DOI: 10.1177/1049732

Klasifikasi

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Tipe Isi

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Tipe Media

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Tipe Pembawa

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Edisi

2014, Vol. 24(1)

Subjek

METODOLOGI PENELITIAN KUALITATIF

Info Detail Spesifik

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Pernyataan Tanggungjawab

agus

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