Amyotrophic lateral sclerosis is a progressive neurodegenerative syndrome characterized by loss of motor neurons. Cognitive impairment occurs in a significant proportion of those affected. Numerous theories of pathogenesis have been advanced. The most cogent hypothesis is that genetic susceptibilities to neurodegeneration interact with environmental exposures, leading to neuronal injury, glial…
Researchers have explored perceptions of health care services among people with amyotrophic lateral sclerosis (ALS), but little is known about how and why people with ALS engage with services. We undertook a grounded theory study to identify key psychosocial processes that underpin how and why people with ALS engage with health care services. We conducted in-depth interviews with 34 participa…